03 November 2009

A few words at last........

Well it has been a long time since my last post.
DH and I have been busy with our research on a number of fronts.
The first is in dealing with Immigration and being able to bring any potential child born through surrogacy back into Australia. The trouble that we have is that my husband is only an Australian resident and in us using a donor egg the child will not be biologically linked to me.................the Australian Citizen.
While we are still pursuing this avenue to see what our options are we have been looking into new science.

The second and most recent development is as follows:

As I have mentioned to a few people I have had ovarian tissue frozen all of this time. I have spoken to my specialist over the last 12 years to see what developments have been made with regard to be using this tissue.
Over a year ago was my last conversation with my specialist before he retired. At that time the committee in at Monash IVF were not confident that they would be able to do anything with the tissue. At this time I was devastated as I had been researching this and was aware that this had been attempted overseas.
At the time we decided to look at and ED. We have recently been to see a new specialist who works with Melbourne IVF. They have had some success in reimplanting Ovarian tissue into the abdomen. While there have not been a lot of cases and only a few confirmed pregnancies through Melbourne IVF, I am pleased to let you all know that we are going to start actively pursuing this through the new doctor.
My understanding is that a number of peices of the tissue will be reimplanted back into my adbomin and will take anywhere from 4 - 9 months to be able to create eggs.
It is not the same as a normal IVF cycle. The cycle as I currently understand it is only a few days.
There is still a long road that we will need to travel and I promise to keep you all updated on a more regular basis.

On a side note, there are new changes to the Victorian legisation regarding surrogacy. While it does still need to be altruistic it will be legal and there will be more rights to the IP. The issue that we still face in Victoria is that there is no register of people who are willing to act as a Surrogate and munderstanding so far is that the IVF centres are not able to assist in helping IP's find someone to act as a Surrogate.
Once I have a better handle on this legislation and I have a copy of the legislation I will post a link to it.

02 August 2009

Lets start at the very beginning

Maria said that the beginning was the "very best place to start" so here goes............................... As a teenager I always had a very difficult time with my period every month (or when it actually decided to arrive). At 16 I developed pains that the doctors thought was my appendix. Well once I was admitted into the hospital and on the table the doctors discovered that I had a cyst the size of a grapefruit on one of my ovaries. From that day onwards my trouble only increased.

When I was 19 I the I developed increased pain and cramps and also break through bleeds even though the doctors had put me on the pill to try and control my periods and all that came with them. This continued on for about a year before I decided that my GP didn’t have a clue how to help me and I went to a Gynaecologist. He had me in the hospital within a week and had diagnosed severe Endo. I was out of the hospital the day after I had the Laparoscopy and a D&C.

I was taken back to the emergency room the next day with severe uncontrollable pain. After a week in the hospital on antibiotics, for an infection that they couldn’t really define. I was discharged and ok for about 2 weeks when I was taken back to the hospital again in severe pain. During this two week period I celebrated my 21st birthday.

After going back to the specialist, he told me that he was not able to explain the pain that I was in as he had removed all of the visible Endo. He suggested that I obtain a second opinion.

At this suggestion I sought out another doctor for this opinion. The new specialist proceeded to do another laparoscopy to diagnose the earlier said endo. After this second surgery I had two episodes in the following 3 months where I had to be admitted into the hospital in severe pain. This new specialist told my mother that I was a 21 your old girl who was looking for drugs and attention. Needless to say I never went back to him.

Through my work I found out about the Endometriosis Association here in Australia. Through this group I was able to see one of the foremost doctors in Melbourne.

When I went to visit him for the first time he sent me for a scan that was conducted at a specialist woman’s ultrasound clinic.

After the scan we went back to his rooms to get the results from him.

The first words out of his mouth were, "I have good news and bad news".

Well the good news was that there really was something physically wrong with me. It was not all in my head. The bad news was that it was not treatable. Adenomyosis. This was th term used. What it is, is a type of growth that the grows within the muscle of the uterus. It takes on its own blood supply and grows. The only sure fire cure is a hysterectomy.
At 21 I wasn’t ready to make that decision.
I opted to try a number of hormone therapies with disastrous effects.
Excessive weight gain was possibly the worst. Bad bleeds, excruitiating pain and swelling. I opted for a Laperotomy. I was told that this would give me 3 weeks to 3 years before I might need more surgery, but the doctor could not give me a certain.
When the doctor went in he was very surprised at the amount of disease. Both endo and adenomyosis. After over 3 hours of surgery I was done.

At 4 weeks post surgery I was back in the doctors rooms in more pain than before the surgery.
After another scan, we found that the disease had grown back. It was now my call as to when I would have further surgery.
After 2 months I called the doctor and booked the hysterectomy in for 6 weeks time. The decision became an easy one once I started thinking about taking my own life. Such was the physical and emotional pain that I was enduring.

When the doctor had finished the surgery and came out to speak to my parents he said that he could not believe how far the disease had progressed in just 5 moths since he was last in there.
Unfortunatly when I woke up from the surgery I aspirated into my lung and ended up in ICU for 4 days. I had last approx 80% of my lung function.

Just another hiccup on the road to recovery.

I am now 34 and 12 years post hysterectomy.

I am please to let you all know that I am married now for 3 years and very happy. My husband is a very understanding man. I think that you would have to be to take me along with all of my baggage.

We are now looking at starting a family and surrogacy seems to be a logical choice for us.

I promise to keep you all informed of our progress and to give you an insight into our life……………..and will not post such long posts in future.

28 July 2009

As this is an entirely new experience for me I am slowly getting this blog together.
Please keep coming to this page as I promise that it will soon contain some real content.
I look forward to sharing with you all in the near future.